Wednesday, February 25, 2009

 

Words That Hurt

I can’t believe I am talking about labels again, but yesterday I was reading several blogs about, for, and by people with developmental disabilities. I can’t believe how much space is devoted to the use of the words “mental retardation” and the word “retard.”

Is our job really to teach people with developmental disabilities to feel offended and victimized whenever they hear those words?

I am a believer that behavior is a form of communication. As long as we teach people to feel like a victim in response to words, they will be victims. As long as we pay attention and reinforce the behavior of those people who use words like “retard” as an intentional insult to people with mental retardation, then the more they will repeat that behavior.

Why does a person with a developmental disability have to be offended by a word? If someone throws a ball at you, do you have to catch it? What is gained by teaching people to be “victims”?

If we were supporting a client with a developmental disability who called a peer a “retard,” we would try to figure out what their behavior was communicating (what do they get from using that word), and we would try to teach them a replacement behavior – a way to communicate the same thing in a more socially acceptable manner. We wouldn’t just teach the offended client to feel victimized. If they were truly hurt by the word, we would teach them to deal with that emotion. We wouldn’t teach them to hate the person who called them that name.

Yet I keep reading blogs really railing against people who use offensive language and making sure we all know that people with developmental disabilities should be horribly outraged and offended and victimized.

Am I, as a white male, supposed to be horribly offended and victimized whenever I hear the words “gringo” or “honky”? Am I supposed to be mad all day or all week (or how long am I supposed to let it interfere in my life?) if someone uses those words in a movie? I choose not to use those type words myself as a matter of personal pride in my manner of communicating with people. I also choose not to be offended when someone calls me a name… at least not for long. Yes, my feelings can be hurt just like everyone else, but then my choice is in how to deal with that emotion. How productive is it for me to spend time feeling sorry for myself or mad at someone because someone else called me a name?

Lots of people are going to strongly disagree with my views here and call me names in order to label me as discriminatory or some such thing. O.K. If that’s what you need to do in order to feel good about yourself, then go ahead. You can insult me, but I don’t have to feel insulted. Insulting me is just your way of behaviorally communicating your disagreement with me.

Yet, we as a society feel the strong need to “protect” people with developmental disabilities from hearing offensive words. Does anyone really think that you are going to stop all people from using offensive words? How about we teach people with developmental disabilities how to deal with their emotions if they are truly offended by someone else being an idiot? How long ago was the word “idiot” considered the offensive/victimizing/politically incorrect word of the day?

The words “mental retardation” are a clinical/diagnostic phrase to describe a condition. They label a condition. The “flu” labels a condition. Should I be offended if someone says that I have the flu?

Yes, words can be stigmatizing for some people. I just don’t get the point of teaching all people with developmental disabilities to feel stigmatized.

Tuesday, February 24, 2009

 

How to Teach Daily Living Skills to Adults with Developmental Disabilities

Alert! This is a shameless hustle for my new book. But then, this is my blog, so I guess its OK to plug my books.

How to Teach Daily Living Skills to Adults with Developmental Disabilities has just been published.

This is my attempt to be heard about how we support adults with developmental disabilities. I'm sorry, but I can't just show up to work every day and not think about what we are doing and how we are doing it. I also know it doesn't do any good to just sit around and complain about the system as some "experts" make a habit of doing.

If you have read any of my blogs, you know I am not terribly politically correct. I do not believe that all adults with developmental disabilities (regardless of need or desire) need to be immediately placed in an apartment of their own and to be placed in a job in the community. I do not stress over labels. I do not believe in "mall therapy." I do not believe in "experts." I do believe that if we pay attention to the client, and we work to support them in what they want for their life, then we can make a difference in that person's life. But you, as a staff person, must have some idea what you are doing in order to provide the support needed. We don't necessarily have a "bad" system of service delivery. We do have a bad system of staff training in many agencies. This doesn't make them a bad agency or bad staff people. It makes them an under-trained agency and staff people. We can fix that. You can fix that!

So, my book shares some of my views about those subjects as well as covering a wide range of basic principles used in supporting clients. I do not claim to be an expert in this field. I have about 17 years of experience and all I am doing is offering my views as based on my hands-on experience. I don't have a fancy college degree. My experience with "experts" has been that they really don't know clients very well and they tend to place everyone in the same box while decrying people who put clients in a box. I'm sure that is very therapeutic for them (the expert) but I'm not sure how helpful it is to the client or to you as a staff person or parent.

So I wrote down my experiences for you to look at and determine for yourself if any of the principles may apply to the clients that you support. I cover the basics of behavior (what is a behavior?), assessing behaviors, writing plans, instructional processes (does your staff really know how to utilize a prompting hierarchy?), reinforcement, behavior management tips, data collection, ethical issues and a few other topics. I tried to write it in a "conversational" tone rather than like a textbook. Textbooks are boring. I tried to bring a little humor to the subject, too.

All I'm asking people to do is think a little bit.

The book is available from Amazon.com or any dot com bookseller... or from me.

At Amazon, just search "Books" for How to Teach. You don't even need to type in the whole name of the book.

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